Support for patients

At home
Whether you live alone or with someone, there may come a time when you need some help and support to carry on with daily life. This is especially true for the elderly. Couples often want to go on doing everything for each other, but this can become quite a strain.

The help you need may be simple, such as having someone do your shopping. Or it may be complex, such as having someone help you with personal hygiene, dressing, and preparing meals.

Ask your renal social worker about local organizations that provide such help.

At work
Know your rights. Employment law and disability law can be complex. If you feel you are being treated unfairly by your employer or have a dispute, seek advice.

Most people can continue to work effectively and you have the right to demonstrate this. Your employer does not have the right to terminate your employment just because of your diagnosis.

You may be entitled to time off work for appointments. However, the amount of time you take off sick as a result of your condition is likely to be of concern to your employers. Seek advice from employee services about your options.